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Post by titaria on Jan 11, 2019 16:56:19 GMT
Wilson’s disease is a hereditary disorder in which the body retains too much copper. Copper is a trace mineral in the body. This means it is essential for good health, but only a tiny amount is needed. When excess copper accumulates, it is stored in the eyes, brain, kidneys and liver. Excess copper collecting in the liver causes cirrhosis of the liver, which is a serious, life-threatening condition. However, Wilson’s disease is treatable.
The important thing for patients with Wilson's disease is to avoid or seriously limit the intake of copper-rich food, such as
Liver
Oysters
Spirulina
Shiitake Mushrooms
Nuts and Seeds
Lobster
Leafy Greens
Dark Chocolate
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Post by marion on Mar 2, 2019 13:52:51 GMT
Food with a low copper content include:
Beef
Eggs
White meat turkey and chicken
Cold cuts and frankfurters that do not contain pork, dark turkey, dark chicken, or organ meats
Most vegetables including fresh tomatoes
Breads and pasta from refined flour
Rice
Regular oatmeal
Cereals with <0.1 mg of copper per serving (check label)
Butter
Cream
Margarine
Mayonnaise
Non-dairy creamer
Sour cream
Oils
Salad dressings (made from allowed ingredients)
Most milk products
Milk flavored with carob
Cheeses
Cottage cheese
Jams, jellies, and candies made with allowed ingredients
Carob
Flavoring extracts
Coffee
Tea
Fruit juices
Fruit-flavored beverages
Lemonade
Soups made with allowed ingredients
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Post by titaria on Aug 11, 2019 21:48:22 GMT
If your tap water comes from a well or runs through copper pipes, have the copper levels in your water checked. Water sitting in copper pipes may pick up copper. Run the water to flush the pipes before you drink the water or use it for cooking. You may need to use a water filter to remove copper from your tap water or even boil your drinking water.
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Post by marion on Nov 24, 2019 1:18:33 GMT
A high calorie diet often worsens Wilson's disease.
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Post by titaria on Jan 11, 2020 3:16:08 GMT
Boiling food, eg beans, reduces copper content by almost 50%, but make sure that you don't use any copper pots or pans!
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Post by marion on Mar 23, 2020 2:13:26 GMT
Call your healthcare provider right away if you have any of the following:
Nausea, vomiting, and loss of appetite
Yellowing of the skin and eyes
Dark urine
Bloody, black stools or unusually light-colored stools
Vomiting blood
Abdominal swelling
Itching that doesn’t go away
Swollen feet or legs
Red palms
Trouble sleeping
Confusion
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Post by titaria on May 20, 2020 23:04:09 GMT
Important: If you have Wilson disease, never eat any of the following organ meats, as they are too high in copper:
› Liver
› Heart
› Kidney
› Brain
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Post by marion on Nov 25, 2020 22:16:31 GMT
Drinking water may contain elevated levels of copper. The copper content of your water should not be more than 0.1 ppm. If you have copper plumbing, the copper content of your water can be reduced by running the water for a while before using it.
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Post by titaria on Jul 12, 2022 23:32:01 GMT
Ultragenyx is pleased to announce that the first patient has been dosed in the CYPRUS2+ study, a one-time intravenous (IV) infusion of UX701, an investigational gene therapy for the treatment of Wilson disease. Ultragenyx is sponsoring this global study to determine if UX701 gene therapy is a safe and effective treatment for adults with Wilson disease. This adeno-associated virus (AAV) gene therapy has the potential to restore ATP7B function, which may improve copper metabolism and distribution.
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